Reflections from H&V Leadership Conference D.C. 2019-Parent Guide Katie Hope
*We will have 9 Blog posts from our 9 GA H&V team members that went to the Annual Hands & Voices Leadership Conference this past September in Washington D.C. at Gallaudet University. Gallaudet is the world's only Deaf/Hard of Hearing University. *
I love conferences!
I always leave feeling rejuvenated, connected, and full of energy and ideas
that I’m ready to implement into my life and my work. The Hands & Voices Leadership Conference (HVLC) was no different. A gathering of people
from across the world from both the Hands & Voices Guide By Your Side and
ASTra Advocate programs, as well as parents of children who are Deaf or Hard of
Hearing (DHH) and the professionals who work with us (early interventionists,
teachers, audiologists, etc), the purpose of this conference is to connect with
others on this hearing loss journey, develop skills and receive training to
better serve our families and be positive agents of change. This year’s conference was held in Washington
DC at Gallaudet University, the world’s only liberal arts university for the Deaf
and Hard of Hearing!
Our GA Hands & Voices team was absolutely thrilled
about the conference and location for this year, but unfortunately there have
been national and state budget cuts, and not all of us were going to be able to
go.I was one of the team members unable
to attend, but our team would not settle for that!It would have been my first Hands &
Voices Leadership Conference, and everyone felt strongly about me being able to
go to the conference for my own professional development, but also for the team
bonding, connecting with other parents and professionals in the realm of
hearing loss, and for my own personal journey.My team rallied around me and contributed their own personal funds to
ensure that I could go, and I have felt blessed me beyond measure.I cannot express my gratitude to be part of
such a generous, compassionate and loving group of women!Thank you to my team: more than coworkers, they have become my
friends and my community.So very
grateful to be a valued part of this group and the work that we are doing together
to better serve our Deaf and Hard of Hearing children in Georgia and their families!
Back to H&VLC! There was so much goodness at this conference!! Although there is a ton I want to share, I've selected my top 3 favorites for this post!
Favorite
session:Practical Approaches for
Inclusion of Deaf or Hard of Hearing Children at Home and Extended Family
Events by Tony Ronco of the Hands & Voices HQ Board
Favorite
social activity:Uptime and then
dancing!
Favorite connecting moments: Visiting with amazing people from around the country who are on this journey too!
Favorite Session: Practical Approaches for Inclusion of Deaf or Hard of Hearing Children at Home and Extended Family Events
In this session, we learned about visual games designed for bonding and promoting interaction within a family. Deaf and Hard of Hearing children are often unintentionally left out in big gatherings. The background noise level tends to be loud, people talk over one another or yell from another room, talk while eating, cover their mouths, etc. Although these are typical things to happen at get-togethers, we can always be more mindful of how it affects our children! A high noise level makes it much harder for our kiddos with hearing loss to follow what’s being said and be part of the conversation. As you will see, these visual games don’t require much language, making them perfect for everyoneto play and take part, whether you speak English, Spanish, Mandarin or use ASL (or if you are learning any of these!). Here are a list of games, along with two video clips of a couple of games! We had so much fun playing in our session, and you will too! Remember, laughter is the key and the big draw. If you can get people laughing, more people will naturally be intrigued and want to watch or join in! Enjoy!
Disclaimer: I'm including videos and pictures of slides I took during the session, but I want to give full credit to Tony Ronco of the Hands & Voices HQ Board for his presentation, research and activities that he shared! Personal request to have this session again haha!
Watch their hands! See how their hands are overlapping? Six people gather round a table with their hands on the table in front of them and crossing arms with the person on either side of them. The point is to tap each hand in order and keep it going round the table. If someone taps their hand out of order, that hand is out! Put it behind your back, then everyone gets closer and keeps going. If someone double taps, that reverses the direction! Last one in wins!
You’re passing along a message and seeing how distorted it gets by the end of the line! In this game, you line up 6-10 people all facing one direction. The person in the back of the line begins by tapping the shoulder of the person in front of them and showing them a sign or phrase, gesture, or movement. The second person now has “the message,” then turns around, taps the shoulder of the person in front of them and shows them the message. The message is passed down the line until you get to the first person. Is the message the same as the initial person started it?? If it’s different, recruit someone from the audience to show the original message!
Favorite social activity: Uptime and dancing!
Uptime is actually “scheduled down time” within the
conference every year!It is a “mandatory
session” where you an choose from different local activities to participate in with other attendees for some fun and social time outside of learning all day! In DC, we could choose from a Tour of Gallaudet, visiting a local Deaf brewery, local distillery, the National Mall, Signing Starbucks and the H Street Festival. Kelli and I chose the festival! H Street is full of restaurants, shops (including the Signing Starbucks!) and things to do! So we joined a group walking to H Street and then toured around, listening to music and people-watching, squeezing through the crowd, visited the Signing Starbucks and then ultimately joining up with our H&V crew for some dancing! So much fun!!
Favorite connecting moments: Visiting with amazing people from around the country who are on this journey too!
I treasure ANY time I get to spend with our GA Hands & Voices team. We don't get the opportunity to get together very often, so when we do, it's quality time I relish and enjoy so much! We laugh, chat, share our stories, ask questions, learn from one another and lift one another up! At the conference, I was able to have this quality time with other Hands & Voices members and professionals too. Here are some pictures of the awesome gals I connected with. We may live in different states (Georgia, Colorado, Florida and Louisiana!), but in our heart of hearts, we are all in this for our Deaf and Hard of Hearing children and making the world a better place for them! So thankful for all the beautiful people I met on this trip! Until next time!
Just a reminder, WE NEED YOU! Let's celebrate our differences!
Reflections from H&V Leadership Conference D.C. 2019-Diversity Parent Guide-Nadia Martinez
*We will have 9 Blog posts from our 9 GA H&V team members that went to the Annual Hands & Voices Leadership Conference this past September in Washington D.C. at Gallaudet University. Gallaudet is the world's only Deaf/Hard of Hearing University. *
As usual I love every minute of the conference.
Starting with our first session in the GBYS meeting.... it gave us the opportunity to
get to know one another. My second session of the day provided me with ways on
engaging through hands on activities and interactive dialogue. Day 2 I started
off with ways to help with socializing skills and maintain lasting
relationships. Research shows that a Deaf/HH person is more likely to lose a
job over personal and social reasons than poor job performance. The personal
strength profile was interesting on how to build rapport and better
relationships. And, my favorite session was how to engage families of Deaf/HH
children with games that everyone in the home can play like lotería and
Telephone and how to adjust to be more visual. -Diversity Parent Guide -Nadia Martinez
Reflections from H&V Leadership Conference D.C. 2019-Parent Guide Beth Flaherty
*We will have 9 Blog posts from our 9 GA H&V team members that went to the Annual Hands & Voices Leadership Conference this past September in Washington D.C. at Gallaudet University. Gallaudet is the world's only Deaf/Hard of Hearing University. *
Parent Guide Beth Flaherty at D.C. Signing Starbucks
As
my son grows up I am constantly asking myself “is this normal? Is this 12 year
old boy? Is this deaf? Is it something to worry about?” Since he was a baby
there have always been odd, or just different behaviors, that I can never quite could be sure about. Hearing parents don’t have the answers I am looking for. I have
been teaching 12/13 year old children for almost 2 decades and I still can’t
always get a handle on where a certain behavior of his is coming from. Then, I
went to the Hands & Voices Leadership Conference in Washington D.C. a few
weeks ago. In every session, every conversation, and every voice I heard, I saw
my son. He is normal, he is deaf, and he is also his very own brand of unique.
Every mom there had a story that paralleled my own some way, their kids to
mine, their families to mine. His stubbornness isn’t unusual. His need to
control a conversation so he can track it, he is not alone in this. His
persistence that is seen as outstanding among his hearing peers is a trait that
most parents spoke about. It was a blessing to have a connection and a blessing
to see that he really is not so unusual after all. We pretend that we don’t
compare our children to others, but we do. It is a natural tendency to try to
track the “normalcy” of our children. I found my perception of my son has been
re-aligned and I can trust that when he seems to be completely different from his
hearing peers it really is just his “normal.”- Parent Guide Beth Flaherty
ASTra Advocate Vicki Hilpp having some "Uptime" Bonding with Parent Guide Beth Flaherty Our GA H&V team has a special bond.
Reflections from H&V Leadership Conference D.C. 2019-ASTra Advocate-Vicki Hilpp
*We will have 9 Blog posts from our 9 GA H&V team members that went to the Annual Hands & Voices Leadership Conference this past September in Washington D.C. at Gallaudet University. Gallaudet is the world's only Deaf/Hard of Hearing University. *
Gallaudet Campus Left-GA E.D. Deshonda Washington Right-ASTra Advocate Vicki Hilpp
One
of my favorite sessions at Leadership this year was the Saturday morning
Socialization skills given by Andrea Marwah. She explained many reasons why D/HH
kids struggle with social skills and then had some specific “to-do” suggestions
for each age group. The rest of the conference was a bit of a blur as I was so
busy getting to the next session and trying to digest each bit of information.
After I got home from the conference and went through my notes, though, I
noticed a specific word that was threaded throughout each of the sessions I
attended. The word was “goals”. As an ASTra Advocate, we think about and talk
about goals all the time with our families. It has become ingrained in us as
just part of what we do. Sometimes when something becomes commonplace in our
world, it loses its impact on us.
Even
though I heard this word and wrote this word many times during the conference,
it’s impact and overall theme didn’t stand out to me until I was back home, had
some separation and was able to look at what I learned from the conference in
whole, rather than focusing on each part. It wasn’t until then that I really
thought about the importance of the the word “goals”, and that we need to be
intentional in setting goals for each step in our child’s development.
I
wonder if sometimes as professionals, and especially as parents of children who
are Deaf or HOH, if we wouldn’t benefit from standing back and really examining
our situation as a whole picture instead of being caught up in the minutiae of
the day. What more could we see in our children, in ourselves, and in our work
that we might be missing each day?
So
today, I plan to take a step back in each area of my life, as a mother, a wife,
a friend, and an Advocate. My hope is that by looking at each of these through
a larger lens I will be able to identity something I may have been missing by
being caught up in the busyness of life. I hope that in doing this, I can see
what new goals are needed to help me be successful In parenting my children and
serving my families. - Senior ASTra Advocate- Vicki Hilpp
Hey all, Parent Guide Katie here! I hope everyone is hanging in there for end-of-the-school-year-craziness and gearing up for an awesome summer! I want to share some posts with sign language learning resources that I've created on my personal blog, Hope and Sensibility. One of the things that has been hardest for me on our hearing loss journey is finding good resources. Along the way, I've made lists and lists and lists and finally decided to put them in one spot! Here are a few direct links, and I'll add a short description beside each one.
How Can I Learn Sign Language? - In this post, I've made a list of all my favorite (and reputable) ASL learning resources, including online ASL dictionaries, apps, youtube channels, books and tv shows.
Room Full of Language Series - This is actually a series of posts. In each one, I focus on vocabulary for one room (kitchen, bathroom, bedroom). These can be great for listening and spoken language and/or sign language! I don't know about y'all, but sometimes Odin and I get so busy with appointments, therapies, equipment, school and LIFE that I forget to consider all the vocabulary I can provide him in every single room! Whether you're just wanting a list of vocabulary to create talking points or you want to learn signs, these posts are for you! Each word is linked to its "how to" video in an ASL dictionary, and there is also a video of our Deaf Mentor teaching us room signs.
Please feel free to reach out if you have comments, questions or suggestions!! I am always looking for ways to share things that have helped us and other families on our hearing loss journey, and I would love your feedback!
This year’s
National Early Hearing Detection and Intervention conference was held in
Chicago. Let me tell you that it was COLD in the Windy City, especially for
this southern girl from Georgia! Temperatures were in the single digits, and we
could see our breath as soon as we walked off the plane and onto the gangway
into the airport. We had a fabulous group to travel with, including some of our
Parent Guides, ASTra Advocates, our H&V Board President and even a Georgia
Pines Early Intervention Specialist. After checking in, we headed out into the
COLD for lunch, and were lucky enough to get the shuttle driver to drop us off
close to our restaurant. However, we had to use foot power to get us back to
the hotel. It was so COLD that we decided to double time it back and I think we
made the 15-minute walk in less than 10.
Did I
mention that Chicago was COLD?!? I think when I look back on that trip being
“COLD” will be one of the things that stands out to me, so that will be my
theme for describing this whirlwind of a conference. You may have figured that
out by now 😊. Here are the COLD things that I took
home from the conference:
Caring
Optimism
Laughter
Determination
Caring: Beyond the chilly temperatures, and
in the confines of the beautiful (and warm) hotel, the Conference got kicked
off with a great reception that evening. Catching up with old friends and
mingling with new ones was such fun. The local H&V chapter hosted an
incredible parent gathering that evening as well, and I think there were
probably more than 100 parents in attendance! It was amazing to hear the
stories from each family, hear about their journeys, challenges and successes. I
have to say that I am moved to tears each time we have parent gatherings. The strength
and understanding that we can give one another never ceases to tug at my heart.
I’m so thankful to be part of such a caring, loving community of parents who
all share a love for someone who is D/HH.
Optimism: One of the focuses of our ASTra
program is engaging families who are transitioning from early intervention into
preschool. I attended several sessions that taught about this ever-important
transition period. There was some great information in the sessions, but what
makes me so optimistic for our transitioning families in Georgia is the
phenomenal collaboration between our stakeholders. At the Georgia Stakeholders
meeting we had EHDI coordinators, early interventionists from GA Pines, Hands
& Voices Guides and Advocates, and wide range of professionals around the
state whose purpose is to enhance the lives of our children with hearing
differences. Listening to each person describe what was working in their own
job, what we can improve upon, and then brainstorming ideas to work together to
make services and supports even better was truly amazing to me. I left the
meeting feeling very optimistic about the working relationships in our state. Great
things are continuing to come for our children!
Laughter: Well, there was a LOT of laughing
going on at EHDI this year. Its wonderful when you work with a group of people
who you truly like and respect. Although the days were packed with information,
we still made time to enjoy each other’s company and made some new friends as
well. I have to say I probably laughed the most during the Dad’s panel Lunch,
which was also hosted by H&V. I always look forward to panel discussions
involving Dads, because they have such a unique (and funny) perspective on life
and this journey we all share.
Determination: I heard from and met professionals
who are dedicated and on-fire for our children. I believe there were about 1000
people attending the conference this year. That’s a lot of determined people
committed to ensuring positive outcomes for people who are Deaf or Hard of
Hearing. As a community, we are a force to be reckoned with! Another favorite
session I attended included college students who are also D/HH. Hearing their
stories, you could feel their determination to have the lives they choose for
themselves. They inspired me to dream big for my own daughter! The best quote
of the whole conference was given by one of the students to a mom who was
having to continuously fight for her child in school. She gave her some tips
and ended with “Don’t give up! Be that mom from hell.” So, if you’re reading
this post, and you’re feeling tired, or down, or just plain frustrated, listen to
the words of this very wise young woman, and “Don’t give up!”
Also, you
might want to steer clear of Chicago in early March, because its COLD there!
-Vicki
Hilpp, Sr. ASTra Advocate and lover of all things warm 😊
For those of you who know about EHDI and those of you who don’t, this post is for you! I had the privilege of traveling to Chicago for the EHDI Annual Meeting with our Georgia Hands & Voices chapter, and WOW!!! We had a blast together! I left the conference feeling like information was oozing out of my eyes, ears and fingers. I feel empowered, more informed, rejuvenated and my heart is full! I was also very ready to get home to my two redheaded loves, even though the younger of the two (ahem, Odin, I’m looking at you) is right in the middle of the terrible twos right now. I digress. Back to EHDI! I’m going to start with some background on what EHDI is and share some resources from the meeting, and then I will finish up with sharing more about my personal experience there!
What is EHDI?
EHDI stands for Early Hearing Detection and Intervention, and it is an initiative to improve how early we identify hearing loss in children and enroll them in the appropriate early intervention programs. Currently, the goal is 1:3:6: each infant should have their hearing screened by 1 month of age, hearing loss confirmed and diagnosed by 3 months, and enrolled in early intervention by 6 months. Every state has it’s own EHDI program. Check below under resources to find a contact list to for your state EHDI representative for more information or to get involved!
Why is early diagnosis and intervention important?
Babies are born ready to take in language from the time they are born! Isn’t that incredible? However, hearing loss affects their ability to soak up language. The sooner we know, the faster we can ensure they have ample access to language, whether signed, spoken (accessed with the appropriate hearing assistive technology) or both. Accessible, interactive and abundant access to language is VITAL because language affects so many things – communication, thinking, learning, problem-solving and social-emotional development, all of which children need for success in both academics and in life!
What is the EHDI Annual Meeting?
Now about the conference! Every year, medical and educational professionals and nonprofit organizations who serve children who are Deaf or Hard of Hearing (DHH), as well as families and individuals who are DHH gather from across the nation to learn about all things hearing loss. There are informational sessions on a wide variety of topics, an exhibit hall with booths and posters set up for mingling and learning about different research, resources, agencies, support groups and companies, three big presentations on current research or current topics. Through all these avenues, we have the opportunity to learn about up-to-date research, resources, support opportunities, cultural competence and best practices on how to enhance the operation of EHDI programs and provide early language and literacy support for DHH children. Best of all, we build relationships! The meeting is a fantastic opportunity to network with a wide variety of people who work with DHH children and share our perspectives, collaborate and learn from one another!
Why is it important to share our various perspectives and areas of expertise?
The more we learn about all the facets of caring for a child with hearing loss, the better we are able to provide 360 degrees of support! As parents, we are seeking guidance and an important perspective from professionals on how to provide access, language, and promote literacy through audiological management and appropriate interventions, but it’s important to remember that our perspective as parents is a big piece of the pie too! We may not have had formal education and training on hearing loss, but we’ve got some pretty amazing on-the-job training that you can’t get anywhere else, and we typically spend more time with our children than anyone else. All that to say, seek help and support and take advice, but remember to trust your gut and give that feedback to professionals too! Every child is different, and you know your child best! Also, it’s very hard to get caught up in the diagnosis and appointments and equipment and therapies and forget to enjoy our children. A big message at the conference was to remember to slow down, savor the little moments and accomplishments, recognize your child’s strengths (and your own) and build upon those. I think this is important to bring back to our team discussion for 360 degrees of support, as social and emotional wellbeing is equally important to our DHH children and our family as a whole, and that piece is often overlooked.
Accessibility Wins!
The conference was incredible. The accessibility was amazing! There were interpreters galore, preferential seating, augmented sound systems, captioning and sheer awareness of how we need to be considerate of access and inclusive with all of our conversations. Let’s take a moment and check out this picture from one of the sessions:
There are three interpreters here just in this one session! The one at the podium is interpreting and signing everything for the audience. Then there are two more interpreters sitting down in front of the panel. One of the Dads on the panel is Deaf.Since he doesn’t have a good view of the interpreter at the podium, these seated interpreters are facing him so that one of them can sign to him everything that is being said.The other voices whenever it’s the Dad’s turn to share.He signs, and she voices what he’s signing for the audience.My brain was so tired and full from all that my eyes and ears were taking in, but it was incredible to see and feel the inclusion regardless of the mode of communication!!
Special Topics and Takeaways:
Unilateral Hearing Loss
One of the lectures focused solely on unilateral hearing loss. Although they represent a substantial portion of the DHH population, these kiddos tend to be a very overlooked for early intervention and also in the school system. Historically, people thought these kids would not have any unique needs since they have one typically hearing ear, assuming that putting them at the front of the classroom with their typically hearing ear toward the teacher would be sufficient. However, current research shows they do have more speech and language, academic and social-behavioral difficulties than typically hearing peers. Some of the challenges kids have with single-sided deafness or hearing loss are difficulty with localization and sound and word recognition, especially with background noise(classrooms are definitely not quiet environments). Localization is figuring out where a sound is coming from. Difficulty with this can be a safety concernsuch as when crossing the street or getting separated from a parent in a busy store and being unable to locate where their parent is standing and calling for them. Research presented during the lecture shows that the grade repetition rate for children with UHL is TEN TIMES HIGHERthan typically hearing peers, and 50% struggle academically. However, get this, only 3%have IEPs. Another huge problem with any child with hearing loss (and kids with UHL are no exception) is listening effort and fatigue. They have to work so much harder than their peers to listen to what is going on in the classroom that they get very tired and have a much harder time focusing on school tasks on top of all the listening.
So what do we do about it? We’re not entirely sure what the answer is, but making sure these children have IEPs and are:
·receiving necessary services
·being monitored for fatigue (they may need listening breaks)
·teachers are following up with the student to make sure they are hearing AND understanding the curriculum or assignment (remember, they’re working very hard just to listen in the first place),
·and ensuring proper hearing assistive technology and/or accessible visual languages are in place.
A friend of mine who has a daughter with single-sided deafness once told me that she feels as though people tend to focus on the “hearing” in Hard of Hearing or on the “typically” hearing ear and overlook the fact that they do also have one ear that doesn’t hear. These kids do have unique needs for access to language and learning, so let’s work together to build awareness and make sure we help them get it!
Transitioning from Early Intervention to School:
One session I attended was focused on bridging the gap between early intervention and school. The main point was that although there have been GREAT strides made for birth to 3, it’s important for both parents and professionals to understand that early intervention alone does not ensure that a child with hearing loss will continue to meet developmental milestones and stay on target and succeed academically. “Proper school placement and appropriate accommodations is an essential component to ensuring optimal outcomes for a child with hearing loss.” Under resources, I included a helpful podcast about public education, advocacy and IEPs that is worth a listen if you need a place to start learning about the advocacy process for school!
·Hands and Voices FL3: Family Leadership in Language and Learning Hands & Voices has just rolled out a new program to support continued development of state EHDI systems and to allow for meaningful parent involvement in those systems. Visit the website to find resources for language, literacy and social development, as well as ways to get involved! I believe they partnered with the Clerc Center below to bring us a free online learning opportunity called “Focus on Early Accessible Language.” See links under Clerc Center for more info. http://www.handsandvoices.org/fl3/
·Laurent Clerc National Deaf Education Center The Clerc Center offers evidence-based resources, online learning and training opportunities and support to families and professionals working with DHH children. Just this week, a free online learning opportunity was released: “Focusing on Early Accessible Language.” Check it out for the opportunity to learn, interact with other families of DHH children and watch a panel of professionals and parents discuss current research and personal experiences on providing language for DHH children. The live sessions have ended, but the videos and comments will be available until the end of the month!
·Sign On This is a really awesome ASL “Virtual Immersion Program!” Many states do not have Deaf Mentors, or sometimes there isn’t much opportunity to interact with local Deaf or Hard of Hearing adults to learn about Deaf Culture and learn and practice ASL. Sign On offers online sessions with an ASL Ambassador (DHH adult who is trained and fluent in ASL) from the comfort of your own home! https://signonconnect.com
·ASL Connect If you’re interested in learning some basic sign language, check out ASL Connect! They offer free videos of basic ASL vocabulary (including ABCs, numbers 1-20, family, emotions, colors, and more). They also offer free online ASL Lessons. It’s a great place to get started, and they also offer more advanced online instruction. https://www.gallaudet.edu/asl-connect
·Ripple Language – Bilingual Language Growth Chart Katherine and Mandy are Speech Language Pathologists who work in early intervention, authored a book together on closing the language gap for children who are DHH and also developed a very helpful (and visual) Bilingual Language Growth Chart: the DRIP-EY, that can help you track a child’s language(s) and determine if they have a language gap. The chart is used to plot and track language assessment scores so you can literally see a comparison between the child’s chronological age and their language age, and you can track two languages at a time if the child is bilingual. Very cool! They also offer professional development as well as online RIPPLE chats for parents during which they provide language resources, everyday language experiences for families, shared reading principles and story telling, as well as interaction with other families of DHH children. https://ripplelanguage.com/services
·All Ears at Child’s Voice – A Hearing Loss Podcast This is a wonderful and informative podcast specifically about public education, parent rights, IEPs. You can learn how to advocate for your child or how to support families through the transition process and throughout their school years.
I absolutely cherished being surrounded by other parents, professionals and my own colleagues who have influenced, challenged, provided validation, and/or supported our journey with Odin! There’s no way I can choose a favorite part of the meeting. However, I can narrow it down to my Top 5 favorite experiences!
Meeting my mom friends, my tribe, my community
My Meag and my Lana. We are part of a small group of mom friends who all have Deaf and Hard of Hearing children. We are all very different, and we even live in 6 different states. However, all 6 of us chose a similar path with our DHH kiddos: to raise them bilingually with both spoken English and ASL. We also ALL had no idea how to do that and struggled to find ways to learn and practice our ASL or how to balance both languages. Almost a year ago, we were all searching and hoping for someone to practice signing with, and we found one another on Instagram through @whyisign! Immediately, we started practicing together through a video chat app, and it was like an emotional catharsis! What we all felt but hadn’t really acknowledged to ourselves was that deep down we were also yearning for a connection with other moms who understood the specific challenges we were each facing. This group of strangers practicing our ASL through an app on our phones quickly transformed into an emotionally supportive, loving and accepting community. We have talked almost every single day for a year!We’ve been through so much already on our individual journeys with our kids, but through it all we still lean on one another and can be open and honest about what we feel without worrying about judgment.We share laughter, tears, resources, language ideas and talk equipment, advocacy and IEPs/504 plans.We love and adore all of our families’ children from afar and celebrate birthdays and celebrations through video on our phones.This was the first time I got to meet Meag and Lana in person!While it was both thrilling to actually meet them in real life and hug their necks, I also felt like I was meeting up with longtime friends that I just haven’t seen in a while.Next up, let’s get ALL of us together!!!So much love to my “Signing Mamas!!!”
Signing with Stacy
So remember when I mentioned above that I met Meag and Lana through @whyisign on Instagram? That is Stacy’s account! She started it to help people share their stories about why they sign in hopes that we can all inspire and connect with one another! Well, mission accomplished!! Meeting Stacy was definitely a fan girl moment for me, both because I admire her so and see her as an icon and major role model in the Deaf Community (she is also the Coordinator of Training at the Clerc Center and she is very passionate about helping hearing parents find resources for their DHH children), but also because she is Deaf and a native signer and I was sooooo nervous about signing with her!!!! But you know what, she was so warm and wonderful and all that anxiety melted away and simply became genuine connection and an amazing and very personal chat. I walked away feeling even comforted and more confident in our family’s choices and decisions for Odin because of her openness and willingness to share her perspective and experience. Also, I got a real taste of “Deaf Bing” (Deaf tendencies) with Stacy – and that was the long goodbye! I think she and I must have said we have to go and goodbye at least 5 times before we actually went our separate ways haha! I already cannot wait to meet again!
GEORGIA Representation and Collaboration!
The first plenary presenter spoke of coalition and a collage being bigger than the individual pictures, of working as a team, and I really see that in our state. I have never been so proud to be from Georgia than since I joined Georgia Hands & Voices. Our representation at our Georgia Stakeholder’s Meeting was incredible, and I believe that we are collectively moving in the right direction for our DHH children and their education!As a parent and new Parent Guide, I truly appreciated the presence of so many different stakeholders and the collaboration, and also how passionate each of them is about improving our EHDI system.
As for my GA Hands & Voices ladies - I am surrounded by such an amazing, smart, compassionate, fierce, down to earth, and just plain fun group of moms!!We had SUCH a great time bonding over the conference, sharing stories and soooo much laughter!One of my favorite times was sitting around the dinner table and listening to them tell hilarious stories of how, amidst all the emotional and stressful ups and downs of this roller coaster of a journey, they have been able to find humor all along the way!I love their hearts and their group dynamic and that I get to be a part of this group and build upon that, learning from their experiences so that I can be a better version of myself to give back to families who are just beginning their journeys with their DHH children!
Panel of Deaf and Hard of Hearing College Students
This was by far my favorite session at EHDI! A group of DHH college students shared their personal and educational experiences growing up in hearing families and in a hearing world. I relished their perspectives as a younger generation of DHH adults and felt so moved by them and empowered in my own decisions for Odin. Several of them did not have full access to language until they were older, and although they may have experienced some degree language deprivation from that, there they sat in front of me as college students, insightful, compassionate, powerful, strong in their identities, and it was amazing to watch their hands and fingers just fly!
One thing that was hard for me and always is when I read or hear about it, was that several of them felt very disconnected from their families because they never learned to sign and there always felt like a barrier between them. It’s one of the things that scares me the most – that one day Odin will seek connection outside of our family because he couldn’t find it within it. On the other hand, they were very encouraging for hearing parents and didn’t resent their own parents. They seemed to accept and respect that their parents were doing what they thought best at the time, and I found that very comforting because I think most of us are all just doing the best we can with the information and resources we have.
One of my biggest takeaways here brings me back to the Hands & Voices motto – “What works for your child makes the decision right.” I want to listen to Odin and follow his lead. I’m teaching him to listen, so I need to be sure I’m listening too! If he’s showing signs of social and emotional struggle, or if he’s asking me to advocate for him or I see that he needs it, or if he chooses not to sign or to take off his cochlear implants, I want to be able to put my feelings and comfort aside and help provide him with what he needs so that he always feels supported and included, especially within our family!
I also found myself feeling very appreciative for the accessibility on my side of the table this time! As a relatively new ASL user, I am nowhere near fluent. I would have missed so much of the nuances of what these students were sharing, so I was very grateful to have an interpreter so that I could follow and understand their full message!
Rachel Coleman giving Odin a shout out!
While I was at the EHDI meeting last week, I got to meet and sit down with “the” Rachel Coleman!! I was completely star struck and kind of like a 13 year old girl at a Backstreet Boys concert (a little embarrassing at 33). But you have to understand that this amazing mom has been “in our living room” on our tv for a big part of Odin’s life. He absolutely adores her. He frequently asks to see Rachel (meaning: I want to watch Signing Time or Rachel and the Treeschoolers) and constantly signs and sings “Helping out around the house,” “the 7 continents song” “H2O-whoa whoa whoa whoa” and “jingle bells.” Yep. Still Christmas over here, according to Odin.
Rachel has inspired me as a mom, an advocate, a learner and a teacher. At the base of it all, we are both hearing moms who have a child with hearing loss, so she’s been there and knows alllll about the challenges we face in providing language and also about finding celebration in all the small things.So my fan-girling was in part because of the role model she’s been to me, but also because she is so special to Odin too. He thinks he knows her!And she was so sweet and made him a video while we were sitting there on her couch chatting it up!
In addition to Signing Time, if you’re a parent and your kiddo is Deaf or Hard of Hearing, I highly recommend you watch her video, “One Deaf Child” (link listed in Resources section). She has a wonderful way of sharing in and validating our fears and worries, while also providing us with a fresh and beautiful perspective - her young daughter’s view of the world. I’m so grateful to have her ahead of us on this journey and for all that she has provided other families and children as she and her daughter, Leah, have walked together on their own hearing loss journey! -Katie
This game is called Pass the Tap (click link to watch video) 
Uptime is actually “scheduled down time” within the
conference every year! It is a “mandatory
session” where you an choose from different local activities to participate in with other attendees for some fun and social time outside of learning all day! In DC, we could choose from a Tour of Gallaudet, visiting a local Deaf brewery, local distillery, the National Mall, Signing Starbucks and the H Street Festival. Kelli and I chose the festival! H Street is full of restaurants, shops (including the Signing Starbucks!) and things to do! So we joined a group walking to H Street and then toured around, listening to music and people-watching, squeezing through the crowd, visited the Signing Starbucks and then ultimately joining up with our H&V crew for some dancing! So much fun!! 
